Friday, 7 April 2017

Devaluing Autistic Rights Is Not Ok!

Here in New Zealand
We still do not have equal rights.
Our rights are squashed.

Valuing Autistics lives is
not where it should be in New Zealand.

The Autistic sector
is grossly underfunded
BY EVERYONE IN NEW ZEALAND
BY ALL THE GOVERNMENT DEPARTMENTS

1 in 68 individuals are Autistic

Autistic children grow into Autistic adults!

Our needs do not go away, it is with us for life. 







Sunday, 15 January 2017

Dream Big

I like to research about Autism
I feel scared and anxious
When I try something new
I was not good at it the first time I tried it
Because I could
Barely write a paragraph
Let alone spell
Or
Know how to ask for help
I had to make a choice
To give it my best shot
Because Autism is
My passion
After I am Autistic
I was eager
To understand myself
And how I operate 
Differently to Neuro-Typicals
I eventually made it
Because clearly
I can write paragraphs now
I can do everything through him who gives me strength -
Is what got me through 
The beginning stages
Of being taught how to research.

Even though I make mistakes
And can fall down
God is always with me
And he wants me to not give up
Giving up means throwing away
Opportunities, not listening to what
God has planned for my life.

When I'm afraid, I need to
Evaluate whether this is something
What God wants me try or whether
He is protecting me from doing harm
To myself
Listening to God can be hard at times
But it is the good thing to do
He will reward me
When I get to Heaven

There has been times when
It seemed impossible to follow through
With my dreams when I submit 
Presentations to present at conferences
Sometimes they get declined altogether
Other times they get accepted
And yes sometimes I get declined
To give a oral presentation
But I'm offered to do
A poster presentation instead
God still wants me to soar on
Because He believes in my abilities!

Friday, 30 December 2016

Neuro Diverse Team World Trip United - Who's In

I sit here
unable 
to
travel the world
due to lack
of
money.

However
I already
travel
the
world.

How can this be!

Internet,
World Wide Web
Laptops,
iPads,
Cellphones
Electricity,
Power.

The ability to type my thoughts!

People,
Look,
See,
Ask,
Receive.

This is how I travel the world already!

Do I wish
to
physically
see
the
world.

Sure I do!

At the
moment.
I can't.

I have to be happy with what I can do now!

God
works
through
me.

It is not through me, but through Christ!

That
the
World.
Looks,
Sees,
Ask,
Receives. 

Their answers to their questions about what it is like to be Autistic!

To be
Autistic.
Means
sometimes
not
having
the
money
to
travel
the
World.

This is true also for Neuro Typicals!

But even
more so,
for 
disabled
and neuro diverse
people.

Sometimes we just don't get hired!
Or do not have the ability
to work full time.
Or simply
because 
people
are blinded
by the
old thoughts
and theories 
of
that 
non speaking
autistics
are incapable
to ever
work!

Non speaking Autistics - Speak Out!

Are we listening?
Are you listening?
Does having the ability to work
mean we also have to physically talk?
Or can we simply be ourselves?

Can Neuro Typcials
Accept Us 
For who we are are. 
For who God made us to be!

That is yours, mine, and the worlds independent decision to make!

I've made my decision.
That through Christ
I am able
You are able
The world is able

Without acceptance we are not able!
Through acceptance we are able!

I love the Lord Jesus Christ!
For he made me
who I am
who you are
what the world is.

But is it sin, or arrogance or simply not having the ability
to accept us for who we are!

We accept Neuro Typicals
some have hurt us.
Some have been very good to us.
But to me God is the only person
that will ever remain Faithful to me. 
The only person that will completely 100%
Believe in me
Even if I stuff up
Even if I do not have the physical ability to speak!

As here I am able to type to you now!

Is that not my thoughts right now!

If you believe someone else has written this for me?
Or you simply think I'm too able to be moderate to severely autistic?

Think again as you are judging me
while I do not judge you
for judging me.
As this 
is 
God's
place to judge.

I already have justice
because
I believe in myself
and God believe's in me whole heartily.

I have one wish, my wish is for you
to know God
in
the
ways
that I know God to be.

A very loving, caring God.




Thursday, 29 December 2016

Wairewa Hot Pools - Scary Slides

Hot pools
Scary slides
Sensory 
Seeker
Avoider 
Can it be done!

Hot pools
Scary slides
Sensory
Seeker
Avoider
It sure can be done!

I am living prove!

Hot pools
Scary slides
Sensory 
Seeker
Avoider
It's bloody awesome

Screammmmmmmmmmmm! 

Hot pools
Scary slides
Sensory
Avoider
Seeker
Neuro typicals 

Screammmmmmmmmmm!

Hot pools
Scary slides
Sensory
Avoider
Seeker
Shared experience! 

Hot pools
Scary slides
Sensory 
Avoider
Seeker
We can be alike!

Hot pools
Scary slides
Sensory 
Avoider
Seeker

Happpppppppppppppppy!

Hot pools
Scary slides
Sensory
Avoider
Seeker

We all have fun!

Hot pools
Scary slides
Sensory
Avoider
Seeker

Water is relaxing for both

AUTISTICS

and

NEURO TYPICALS

Wednesday, 20 July 2016

Being an Autistic Woman

Autistic
and
being a woman
can be
extremely hard 
at times.

I have
invisible
woman issues
that I have to deal with
which really
not a lot of woman 
without autism really
talks about.

Which leaves me
guessing
as to trying
to understand
these woman issues
I deal with.

Sensory issues
communication issues
anxiety issues
emotional regulation issues
sexuality awareness and
understanding issues.

On top of this
I deal with
monthly bleeding.

This is the thing
that really 
not many woman 
without autism 
talk about
let alone autistic woman.

The sensory issues
with monthly bleeding
can be so severe at times
that it leaves me
to head bang and
self bite 
during this time.

I can not stand
the sight of blood
I can not tolerate
sanitary pads
let alone
have the gross motor skills
to use tampons.

Some autistic woman
opt to 
suppress 
their monthly bleeding.

I was one woman
that chose to 
suppress
my monthly bleeding.

Sadly I reacted
it did not go well for me.
So the Mirena 
was removed.

Now I am left
with the monthly bleeding
which 
I
sensory and anxiety
wise can not handle.

Sometimes I wonder 
why 
I have monthly bleeding.

I wish that my moderate to severe Autism
meant that monthly bleeding wouldn't 
come either.

As I 
really
can't handle
it at all!

How do I go about it,
when I have to rely
on my carers 
to help me
manage my 
monthly bleeding.

This affects
my self esteem.

I get heavy bleeding
this I do not like. 
This leaves
me to be highly anxious.
The sensory stuff of 
monthly bleeding
I will never like. 

This is the stuff
that neuro-typicals
do not understand how 
sensory issues for 
a autistic woman
affect us
being able to effectively
manage our 
monthly bleeding on our own.

Sunday, 26 June 2016

Jesus as a Minority - How it Relates to me as a Disabled Person

Jeremiah 29:11
For I know the plans
I have for you
Plans to give you
a hope 
and a future. 

This resonates with me 
at the moment 
Because 
I'm going through 
Many stressful events
at the moment.

It reminds that
I need to put 
my full trust
in God.

But I also 
wonder how the verse
relates to us
as disabled people
and being a 
minority group.

I see it
like this.
Jesus was a minority
there was only one of him

So in a way
this reminds me 
of the disabled sector
and how we feel
Not included 
by society
at times.

I think Jesus
also felt
excluded
but he 
remained with 
a open heart
for whenever
people are ready.

In a way
that is like us
we are waiting and ready 
to let people in
when they choose
they want to associate with us.

Sunday, 19 June 2016

Invisible becomes Visible Disability

So when does invisible becomes a visible disability. 
My neuro-diverse needs
are invisible 
to the naked eye
unless you know
what you are looking for.

But what if you were
to suddenly throw in
a visible
physical disability
into the mix.

Yes! Thats Right!
I have a physical disability.
I had not really
thought of this before,
until I became aware
that in fact it was
a visible disability,
but it remained
a hidden
visible physical disability.

Until it became clearly
a visible physical disability.
I have 2 drop foots,
no one knows why.
But the fact remains that 
I do!

All my life I did not
know there was a reason
why I tripped up over
my own feet.

As much as it
can be so
clearly
insanely funny
that I appear
to fall
down
and
up
stairs!

I did not know
it was the drop feet
making it
that I was
so insanely incredibly 
a funny accident
for others 
to laugh upon 
and point
at me
all through out
my high school years.

Throw in
2 orthotic ankle braces.
As much as it helps me
to walk better
with ease!

It directly points out
that I'm disabled.
The sudden stares
I now get directly looking
at my feet.

By others that appear
to be uncomfortable
with the fact
that yes
I'm disabled.

But why suddenly 
look at my feet
when all 
you've done
is point out 
my Autistic behaviours.

My hand flapping
My rocking
My pacing
My thumb sucking!

Do I suddenly
look disabled
because
I have
foot braces!

I actually
find your behaviours
insanely funny.

I gladly accept
you now point out
my visible physical disability.

It redirects you
from my 
neuro-diverse behaviours.

Maybe
you will now accept
my neuro-dirvse 
behaviours.

However
why does it take
foot braces
to accept 
that 
I am disabled.

Couldn't you accept 
prior to this
that Ive been
disabled since the day
I was born.

Or should I say
because society
see me as abnormal
and defective
that you had 
to bully
my neuro-diverse needs
my whole life.

I look forward to the day
that you experience
what it is like
to be different
and to succeed in life
just like
all the so called
"normal" individuals. 

Welcome, I can assure 
you that you
are already different
because there 
simply
is
no such thing,
as 
NORMAL.